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Research and Reading Map for Teachers: Books with Characters Dealing with Chronic Conditions

The Long List

Albinism

  • Akata Witch by Nnedi Okorafor 
  • Golden Boy 
  • Ghost Boy 
  • The Tragedy Paper by Elizabeth LaBan 

Cancer

  • Anthem for Jackson Dawes by Celia Bryce
  • Fault in our Stars by John Green
  • Me, Earl and the Dying Girl by Jesse Andrews
  • Side Affects May Vary by Julie Murphy

Cerebral Palsy

  • Say What You Will by Cammie McGovern
  • Reaching for the Sun by Tracie Vaughn Zimmer
  • Accidents of Nature by Harriet McBryde Johnson

Cystic Fibrosis

  • Breath by Donna Napoli (cystic fibrosis)

Down Syndrome

  • Fade to Black by Alex Flinn 
  • The Memory Keeper’s Daughter by Kim Edwards 

Dwarfism

  • The Autobiography of Mrs. Tom Thumb by Melanie Benjamin
  • Big Girl Small by Rachel DeWoskin 
  • A Prayer for Owen Meany by John Irving 

Epilepsy and other Seizure Disorders

  • Epilepsy and other seizure disorders
  • 100 Sideways Miles by Andrew Smith
  • Because You’ll Never Meet Me by Leah Thomas 
  • The Last Book in the Universe by Rodman Philbrick
  • Prizefighter en Mi Casa by e.E. Charlton-Trujillo
  • Takedown by E.M.J. Benjamin
  • Tinkers by Paul Harding
  • Zane’s Trace by Allan Wolf

Muscular Dystrophy

  • The Six by Mark Alpert  

Tourette's Syndrome

  • Jerk, California by Jonathan Friesen 
  • Michael Vey: The Prisoner in Cell 25 by Richard Paul Evans 
  • When Mr. Dog Bites by Brian Conaghan 

Other:

  • Grows That Way by Susan Ketchen (Turner Syndrome) 
  • I Hunt Killers and sequels by Barry Lyga (hemophilia)
  • The Last Leaves Falling by Sarah Benwell (Lou Gehrig disease)
  • One by Sarah Crossan (conjoined twins)

 

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